Lorenzo was diagnosed at age 6 with ALD (adrenoleukodystrophy) and doctors told his parents the disease would lead to their son's death in two years.
A study published in 2005 showed that an oil treatment patented by Augusto Odone can prevent onset of symptoms for most boys diagnosed with ALD.
Odone plans to take his son's ashes to New York to mix them with the ashes of his wife, who died in 2000.