Group raising awareness about children with serious illnesses

FRESNO, Calif.

A local group of photographers hope to capture moments of strength and courage through the lens and share the stories online.

Armed with cameras, Brittany Wilbur and Carrie Miranda are ready for a photo shoot with little Hendrix Wille.

The two-and-a-half year old suffers from acute myeloid leukemia.

After spending 40 days in intense chemotherapy and rehab -- this is only the fourth day he's been allowed outside of Children's Hospital of Central California.

"First thing he wakes up is outside. The first day I brought him home I was like 'it's nap time'. He said 'no, play'. He didn't want to take a nap, he just wanted to play," Rose Wille said.

On this day Hendrix was playing with his toy cars and trucks outside of the Quail Lake Clubhouse in Clovis. While he's engaged in play time he's taking time to smile for the camera.

Brittany Wilbur created the group Sweet Nectar Society, which features local photographers that donate their time and resources to offer a lifetime of memories.

"When my daughter was one she was diagnosed with failure to thrive. And when going through the process of figuring out what was wrong with her, I saw the need of capturing every special moment," Wilbur said.

Wilbur's daughter eventually got better, but she wanted to provide these special moments to others who were going through similar heartbreaks.

"I had heard about it from one of the other parents who had already gotten their pictures taken, and they had told a social worker that they were so happy and they were crying when they got this big, you know, nice photo book with all these photos in it when their kids look, healthy and happy. So I think that it just really makes, touches your heart that they're doing it," Wilbur said.

The goal of course is to be doing more of it more often.

Even in the most difficult times Rozanne can look at a picture like this and see the side of Hendrix his disease will never destroy.

Hendrix will go back to Children's Hospital for a second round of chemotherapy on Tuesday.

His chances of survival will improve if he can get a bone marrow transplant in the next month or so.

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